Those are some scary words.
They were part of the test results my SisterDear Janice just received from the MRI that was given to my 12 year old nephew Tommy a few weeks ago. There were more results and, in fact, even more questions, but that is easily the scariest part. Janice is fraught with worry as she waits for the next appointment with Tommy's Neurologist in 3 weeks and then a Geneticist in about 3 months.
Dr. Google times two have been reading all kinds of scary stuff about Subependymal Nodular Gray Matter Heterotopia.
Janice is also worried about a meeting she has next Monday with a bunch of suits (school officials) regarding Tommy's schooling. She's afraid they are going to tell her that Tommy is no longer welcome at his school. I have to say that I suspect the same thing. His outbursts and behavioral issues are disrupting the entire class and he needs one-on-one supervision... sometimes even that is not enough. It's not fair to the other kids or to the teachers. We understand that. But where will that leave Tommy? Or Janice's job as a Paraprofessional for kids much like Tommy?
Waiting IS NOT something a mother does well when it concerns her child's health and well-being.
Worrying IS something a mother does all too well.
Please add Tommy and my SisterDear to your prayer list.
I know you will, and I thank you, from the bottom of my heart.
In other news, Whitey is getting fed and medicated through the tube quite nicely. I won't post a photo of him now because he looks just awful. He is just a cat-like lump right now. He stays curled up all the time and only gets up to go to the litterbox. Unfortunately, although expected, he has developed very loose stools and that means a poopy butt. Yesterday I had to add insult to injury to sickness and give him a half-bath. Bless his heart. He's so NOT my delightful, happy boy right now. I take him in today just to be weighed to see if he's gained any weight.
In more other news, Gandalf has had 2 full days in kitty confinement with no spraying in the bathroom whatsoever. I visit him often to cuddle, scritch and hold him. Last night I gave him 15 minutes out on the patio. I watched "the business end" every moment as he walked around sniffing fresh air and stretching his legs without incident. Whew. I returned him to kitty confinement just before going to bed. We shall see.
I'm sorry to have such a downer post, but this actually is my life right now and I don't know how to make it sound better. I SO need a cruise! 100 days to go... unless I find a cruise for MotherDear and me out of Jacksonville before then! I'm still looking!
Believe it or not, I shall still find a way to put some YAY in my day. And I hope you do, too!
Those are very scary words for the whole family! I understand the school's outlook, but Tommy will not understand why he cannot go and that is the saddest part of it! i hope they ave a good solution for all concerned, especially Tommy.
ReplyDeletePoor WHitey! WE know he is nor a happy kitty right now, I pray your sweet boy comes back to you soon!
Hopefully Gandalf understands he is in time out and why!
Purring and praying for all of your family!
We are purring and sending healing energy to your nephew, your sister and to sweet Whitey.
ReplyDeleteIt sounds like your SisterDear is going through much of what my CyndiDear did with her son Daniel. Scary words and times indeed but hopefully it will all work the best for Tommy and Janice both. Needless to say, they are added to my list of thoughts and prayers.
ReplyDeleteI sure hope that Whitey gets some good results when he goes in for his weighing today. Fingers are crossed on that front too.
Hang in there, woman, better times are coming!
We are sending lots of purrs and good vibes your way.
ReplyDeleteI'm sorry your family is going through this with your nephew. I hope that your sister and all those "officials" are able to figure out what do do to help your nephew.
ReplyDeleteSending purrs and prayers to your whole family.
ReplyDeleteMixture of good and bad news. Don't likey :( Wish there was more good news. Thinking about you all and crossing my fingers :)
ReplyDeleteWill definitely add Tommy and Lynda (and family) to my prayer list! Change is hard on a child like this, and the mama.
ReplyDeleteHope Whitey is gaining some ounces. You have had your hands too full and need some YAY...and a cruise!
Lotsa scritches, and bit hugs, honey...
Those are scary words for parents and family. HUGS... Is there a special education program in his district? Maybe there are homeschool groups or educational co-cops in the area.
ReplyDeleteI'll be keeping them on my heart and prayers...
Poor Whitey boy. I hope he gets a good report from the doc today. Please keep us posted. Hang in there mommy...
We are so sorry that you are going through one of life's most painful seasons... watching loved ones suffer. But sharing it helps. You have our best purrayers for your entire family.
ReplyDeleteprayers for sure honey, worry is the natural thing to do but so useless, i know, but i do it all the time... we just can't help ourselves. wonder why.
ReplyDeletehugs (big ones), bee
oxoxoxoxoxoxooxox
Oh goodness! We are purring and praying for your whole family.
ReplyDeleteAdded everyone concerned to my prayer list. What a shame.
ReplyDeletePoor Whitey. He's been at the top of my prayer list for quite some time, just so you know.
Have a terrific day. Big hug and lotsa lovies and scritches to all the babies, especially Whitey. :)
Yes, sometimes life can be a downer and a little sunshine would be welcome. We hope there will be some good news soon on all you wrote about. Your nephew, Whitey and Gandalf. Pawhugs.
ReplyDeleteYIKE! We dropped in to check on Whitey and see this. Purrrrrrring that Whitey keeps hanging in there, and starts eating on his own sometime soonest.
ReplyDeletePurrrrraying for Tommy, you and SisterDear. We hope things work out for you all.
ppuurrrrrrrrr
We are purring for Tommy and Whitey and we has our paws crossed Gandalf stops spraying.
ReplyDeleteThe Feliway thankfully seemed to work with Scylla.